Resources for Families

Santa Barbara County CCS Handouts and Forms

Our  CMS Community Resources List for Children with Disabilities and Illnesses  is a comprehensive list of contact information for children with Special Health Care Needs.

Tips for Parents of Teens (English)

Recomendaciones para Padres de Adolescentes (Spanish)

Adult Services Declaration Form

Age 18 Medical Release Form (English)

Age 18 Medical Release Form (Spanish)

Adult Provider List

Health Insurance Options Over Age 21 (English)

Health Insurance Options Over Age 21 (Spanish)

Housing Resources (English and Spanish)

Transition Resources Handout (English and Spanish)

Transition Websites

Moving On - Transition Workbook for Parents

Adolescent Health Transition Project

The National Dissemination Center for Children with Disabilities (NICHCY)

PACER Center (Parent Advocacy Coalition for Educational Rights)

Social Security Administration

Advance Health Care Directive Information

Advance Health Care Directive Kit (California Medical Association)

Advance Health Care Directives (Disability Rights California)

Directivas anticipadas de atención de la salud (Disability Rights California) 

College Planning

Heath Resource Center  

Going to College  

WNY Collegiate Consortium and Disability Advocates >

Conditions/Diseases

Cancer

CHLA Cancer Resouces

Teens Living with Cancer.org

Diabetes

American Diabetes Association - Living with Diabetes - Parents and Kids

Heart Disease

Congenital Heart Disease Transition Education Program

Hydrocephalus

Health-Care Transition Guide for Teens and Adults with Hydrocephalus

Muscular Dystrophy

Road Map to Independence for Young Adults

Spina Bifida

Becoming an Adult Living Successfully with Spina Bifida

Conservatorships, Estate Planning, Legal Information

Achieving Independence

Special Needs Alliance

Countywide Clinics

County Health Care Centers

Santa Barbara Neighborhood Clinics

Community Health Care Centers of the Central Coast

Marian Community Clinics

Employment

Department of Rehabilitation (Santa Barbara District)

National Collaborative on Workforce and Disability (NCWD) - Youth

NCWD - A Toolkit for Youth with Disabilities Transitioning to Adulthood

Working with a Disability in California

Health Insurance Information and Resources

Covered California Insurance Program Options  

HealthCare.gov  

California Major Risk Medical Insurance Program  

Genetically Handicapped Persons Program

Medically Indigent Adult (MIA) Program

Local Resources and Agencies

Alpha Resource Center Forms and Publications

Alpha Resource Center Transition to Adulthood guide

CenCal Contact Numbers and Provider List

Santa Barbara Special Education Local Plan Area (SELPA)

Transition from Teen to Adult by Terri Gray

Tri-Counties Regional Center (for those of all ages with developmental disabilities)


The following links are provided to help people locate resources for Children with Special Health Care Needs.


Santa Barbara County Resources

CALM (for Parenting Support and Child Abuse Concerns)

CMS Health Education

Family Service Agency

Family First

Nutrition Program for Women, Infants and Children (WIC)

Lompoc City Programs

Santa Barbara City Programs

Santa Barbara County Education Office and All Public Schools

Santa Barbara County Medical Society

Santa Barbara Parent Resources

Santa Maria City Programs

Tri-Counties Regional Center for Children with Developmental Disabilities


Professional and National Organization Resources

Action Alliance for Children

American Academy of Pediatrics

American Academy of Family Practice

Center for Disease Control

Easter Seals

Family Voice (Resource for Families of Children with Special Needs)

National Information Center for Children and Youth with Disabilities

National Organization for Rare Diseases

Pacer Center (Resource for Parents of Children with Disabilities)


Medical Information Sources

Mayo Clinic

My Child Without Limits

National Institute of Health (NIH)

UpToDate for Patients

Medline Plus


Insurance Resources and Government Agencies

Consumer Information / California Association of Health Underwriters

Coverage For All / Foundation for Health Coverage Education

eHealthInsurance


Health Programs

Major Risk Medical Insurance Program

Medi-Cal

Department of Health Care Services

Covered California Plan Sign up   


Family Services, Counseling, and Education

Anger Management Counseling Services

California Birth Defects Monitoring Program

California Teratogen Information Service and Clinical Research

Car Safety Seats

Catholic Charities

Child Abuse Listening and Mediation

Child Welfare Service (CWS)

County Schools Special Education

Family First

Easter Seals

The Fatherhood Coalition

After School Program

Le Leche League

March of Dimes

Postpartum Education for Parents (PEP)

Rape Crisis Center

Tri Counties Regional Center

Welcome Every Baby


Resources Regarding Specific Diagnoses

Asthma (Asthma and Allergy Foundation)

Attention Deficit Disorder

Blindness/visual Impairment (American Foundation for the Blind)

Blindness/visual Impairment (National Federation of the Blind)

Cerebral Palsy Local Resources

Cleft Palate and Lip

Cystic Fibrosis

Deaf-Blind (Helen Keller National Center)

Deaf (House Ear Institute)

Diabetes (American Diabetes Association)

Diabetes (Children with Diabetes)

Down Syndrome

Dyslexia

Epilepsy/Seizure Disorders

Fetal Alcohol Syndrome

Heart Disease

Kidney Problems

Learning Disabilities

Liver Disorders/Hepatitis

Mental Health

Mental Retardation

Muscular Dystrophy

Short Stature/Dwarfism

Spina Bifida

Stuttering

Sudden Infant Death Syndrome (SIDS)

Through the Looking Glass (disability related links)