Resources for Families

Our CMS Community Resources List for Children with Disabilities and Illnesses is a comprehensive list of contact information for children with Special Health Care Needs.

Age 16 Transition Letter to Parents (English)
Age 16 Transition Letter to Parents (Spanish)

Tips for Parents of Teens (English)
Recomendaciones para Padres de Adolescentes (Spanish)

Age 18 Transition Letter to Parents (English)
Age 18 Transition Letter to Parents (Spanish)

Adult Services Declaration Form

Age 18 Medical Release Form (English)
Age 18 Medical Release Form (Spanish)

Adult Provider List

Health Insurance Options Over Age 21 (English)
Health Insurance Options Over Age 21 (Spanish)

Housing Resources (English and Spanish)

Transition Resources Handout (English and Spanish)

Adolescent Health Transition Project
Health Care Transitions (many Resources)
The National Dissemination Center for Children with Disabilities (NICHCY)
PACER Center (Parent Advocacy Coalition for Educational Rights)
Social Security Administration 
Youth Transition Toolkit

Advance Health Care Directive Information
Advance Health Care Directive Kit (California Medical Association)
Advance Health Care Directives (Disability Rights California)
Directivas anticipadas de atención de la salud (Disability Rights California)

College Planning
Heath Resource Center 
Going to College 
WNY Collegiate Consortium and Disability Advocates

Conditions/Diseases

Cancer
CHLA Cancer Resouces
Teens Living with Cancer.org

Diabetes
American Diabetes Association - Living with Diabetes - Parents and Kids

Heart Disease
Congenital Heart Disease Transition Education Program

Hydrocephalus
Health-Care Transition Guide for Teens and Adults with Hydrocephalus

Muscular Dystrophy
Road Map to Independence for Young Adults

Spina Bifida
Becoming an Adult Living Successfully with Spina Bifida 

Conservatorships, Estate Planning, Legal Information
Achieving Independence
Special Needs Alliance 

County and Neighborhood Clinics
County Health Care Centers
Santa Barbara Neighborhood Clinics
Community Health Care Centers of the Central Coast
Marian Community Clinics 

Employment
Department of Rehabilitation (Santa Barbara District)
Healthy and Ready to Work
National Collaborative on Workforce and Disability (NCWD) - Youth
NCWD - A Toolkit for Youth with Disabilities Transitioning to Adulthood
Working with a Disability in California 

Health Insurance Information and Resources
California Health Care Reform
HealthCare.gov 
California Major Risk Medical Insurance Program 
Genetically Handicapped Persons Program
Medically Indigent Adult (MIA) Program

Local Resources and Agencies
Alpha Resource Center Forms and Publications
Alpha Resource Center Transition to Adulthood guide
CenCal Provider List
Santa Barbara Special Education Local Plan Area (SELPA)
Transition from Teen to Adult by Terri Gray
Tri-Counties Regional Center (for those of all ages with developmental disabilities)

The following links are provided to help people locate resources for Children with Special Health Care Needs.

CALM (for Parenting Support and Child Abuse Concerns)

CMS Health Education

Family Service Agency

Family First

Lompoc City Programs

Santa Barbara City Programs

Santa Barbara County Education Office and All Public Schools

Santa Barbara County Medical Society

Santa Barbara Parent Resources

Santa Maria City Programs

Tri-Counties Regional Center for Children with Developmental Disabilities

Action Alliance for Children

American Academy of Pediatrics

American Academy of Family Practice

Center for Disease Control

Easter Seals

Family Voice (Resource for Families of Children with Special Needs)

Healthy and Ready to Work

National Information Center for Children and Youth with Disabilities

National Organization for Rare Diseases

Pacer Center (Resource for Parents of Children with Disabilities)

Mayo Clinic

My Child Without Limits

National Institute of Health (NIH)

UpToDate for Patients

Medline Plus

Consumer Information / California Association of Health Underwriters

Coverage For All / Foundation for Health Coverage Education

eHealthInsurance

Healthy Families

Major Risk Medical Insurance Program

Medi-Cal

Department of Health Care Services

Anger Management Counseling Services

Breastfeeding Coalition

California Birth Defects Monitoring Program

California Teratogen Information Service and Clinical Research

Car Safety Seats

Catholic Charities

Child Abuse Listening and Mediation

Child Welfare Service (CWS)

County Schools Special Education

Family First

Easter Seals

The Fatherhood Coalition

Healthy Start Programs

Le Leche League

March of Dimes

Postpartum Education for Parents (PEP)

Rape Crisis Center

Tri Counties Regional Center

Welcome Every Baby

Asthma (Asthma and Allergy Foundation)

Attention Deficit Disorder

Blindness/visual Impairment (American Foundation for the Blind)

Blindness/visual Impairment (National Federation of the Blind)

Cerebral Palsy

Cleft Palate and Lip

Cystic Fibrosis

Deaf-Blind (Helen Keller National Center)

Deaf (House Ear Institute)

Diabetes (American Diabetes Association)

Diabetes (Children with Diabetes)

Down Syndrome

Dyslexia

Epilepsy/Seizure Disorders

Fetal Alcohol Syndrome

Heart Disease

Kidney Problems

Learning Disabilities

Liver Disorders/Hepatitis

Mental Health

Mental Retardation

Muscular Dystrophy

Short Stature/Dwarfism

Spina Bifida

Stuttering

Sudden Infant Death Syndrome (SIDS)

Through the Looking Glass (disability related links)